IZAZOVI RODITELJA DJECE S TEŠKOĆAMA U RAZVOJU TIJEKOM PANDEMIJE COVID-19
PARENTS CHALLENGES WITH CHILDREN WITH DEVELOPMENTAL DISABILITIES DURING THE COVID-19 PANDEMIC

Summary/Abstract: Like any role in life, the role of a parent is fulfilling, but it also brings with itself a number of challenges that parents need to face. Ways of coping are different, and social support is an important resource in overcoming existing difficulties. The birth of a child with developmental disabilities often contributes to greater parental stress. The reasons for this can be the awareness of the need for greater care for the child and fear of the unknown. Parents often need support to overcome challenges and successfully adapt to a new life situation. With all the challenges in everyday life, the current pandemic caused by the Sars-CoV-2 virus is leading to a complete change in human daily life. The closure of schools, kindergartens, shops, parks and the interruption of various services put children with disabilities and their parents in a particularly disadvantaged position. In line with the above, and the fact that most research conducted so far were focused exclusively on parents of children without disabilities, this study is the first pilot study aimed at looking at the perspective of parents of children with disabilities as a vulnerable group of parents daily, especially during a pandemic, remains on the periphery, both research- scientific and practical. The aim of this paper is to present the results of research related to the difficulties and challenges faced by parents of children with disabilities since the proclamation of the Covid 19 pandemic and their proposals for improving the formal support system in crisis situations.

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