Expectations of participants in biobanking research - review study
Expectations of participants in biobanking research - review study

Summary/Abstract: Introduction: Several experts in Slovakia point to the need for participation in international biobanking structure. Sociology of biobanking focuses on various issues of biobanking research. Objectives: The aim of this study is to identify key findings on expectations of biobanking participants (donors, public) based on a review study of the findings published in PubMed database. Findings: Several specific areas of expectations of biobanking participants were identified, as a) expectations of participants of information, overview and transparency of biobanking research, b) expectations of individual and family benefits of biobanking, c) expectations in the area of the common good, d) expectations type of consent, controllability and clarity of data. Key moderating variables of biobanking expectations were identified, as sociodemographic variables of age, education, nationality, religiosity, and perception of the legitimacy of participation in biobanks, trust in scientists and institutions as well as a specific tissue type. Conclusion: Expectations of participants in the biobanking were followed as one of the factors biobanking participation in addition to institutional support, awareness, information sources and perception of risks in biobanking. Specific areas of expectations and mediating variables of biobanking participants were identified. The study includes recommendations for future research in the field of expectations in biobanking.

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