Individuals with Profound Intellectual and Multiple Disabilities as Subjects of Empirical Studies – A Researcher’s Perspective Cover Image

Osoba z głęboką intelektualną i wieloraką niepełnosprawnością podmiotem badań empirycznych – perspektywa badacza/badaczki
Individuals with Profound Intellectual and Multiple Disabilities as Subjects of Empirical Studies – A Researcher’s Perspective

Author(s): Danuta Kopeć
Subject(s): Social Sciences, Sociology, Health and medicine and law, Sociobiology
Published by: Uniwersytet Adama Mickiewicza
Keywords: person with profound intellectual and multiple disabilities; study participant; informed consent; research paradigm; research methodology

Summary/Abstract: Individuals with profound intellectual and multiple disabilities (PIMD) present considerable researchchallenges due to their psycho-physical condition and their functioning as research subjects. Usingtwo research projects as examples, one Polish (Kopeć, 2013, The (Non)-educational Reality of Indivi-dual with Profound Intellectual Disabilities) and the other Finnish (Vehmas, Mietola, 2021, NarrowedLives: Meaning, Moral Value, and Profound Intellectual Disability), difficulties encountered duringresearch involving individuals with PIMD were identified. The challenges related to the methodologyof the conducted research projects were discussed, such as the choice of research paradigm, selec-tion of research method, and their execution. Attention was also drawn to concerns associated withobtaining informed consent from individuals with PIMD who are subjects of the study. Referring tothe research projects conducted, the researchers presented their approach to resolving the difficultiesencountered during the research process.

  • Issue Year: 2023
  • Issue No: 71
  • Page Range: 61-74
  • Page Count: 14
  • Language: Polish
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