Право на достъп до здравна грижа на хората с редки заболявания
Right of Access to Health Care for People with Rare Diseases

Author(s): Antonia Ilieva
Subject(s): Law, Constitution, Jurisprudence, Civil Law, Sociology, Health and medicine and law
Published by: Пловдивски университет »Паисий Хилендарски«
Keywords: orphan medicinal products; rare diseases; medical provision
Summary/Abstract: In the last decade of the twenty-first century, there has been a tendency of sharp increase in the number of diagnoses registered in the List of Rare Diseases in the Republic of Bulgaria. This trend brings to the fore a number of important issues regarding the availability of medical resources and knowledge related to these diseases, patient access to modern methods of treatment and timely provision of medical assistance. There is also a significant problem with access to orphan medicinal products, which most often turn out to be suitable for controlling the condition of a patient suffering from such a disease.

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