The right to ignorance” in the context of the essence of the genetic test as a matter concerning family. Comments on the draft law on genetic (...) Cover Image

"Prawo do niewiedzy” w kontekście istoty testu genetycznego jako sprawy dotyczącej całej rodziny. Rozważania na tle projektu ustawy o testach (...)
The right to ignorance” in the context of the essence of the genetic test as a matter concerning family. Comments on the draft law on genetic (...)

Author(s): Joanna Haberko
Subject(s): Law, Constitution, Jurisprudence
Published by: Kancelaria Sejmu
Keywords: Poland; genetic tests; right to ignorance; information; informed consent;

Summary/Abstract: The text examines the draft law on genetic testing for health purposes. Considerations are carried out in the context of the “right to ignorance” and the situation of family members of the patient. The author, in her analysis, concentrates on the principle of the informed consent and the right to respect for patient’s private life, in particular to protection of his or her personal data derived from a genetic test. There is no legal regulation of the genetic testing under the Polish law. However, it is an important issue that requires an intervention of the legislator. The author reflects that where the results of a genetic test undertaken on a person can be relevant to the health of other family members, the person tested shall be informed and these members should be informed as well.

  • Issue Year: 2014
  • Issue No: 2
  • Page Range: 45–64
  • Page Count: 20
  • Language: Polish