Volja, snaga mišića i patofiziološki procesi u osoba s neuromišićnim bolestima
Will, muscle strenght and pathophysiological processes of individuals with neuromuscular diseases

Summary/Abstract: This study deals with an interrelation of will, voluntary motor activity and pathophysiological substrate in patients with neuromuscular diseases. The study has included an available sample of 78 patients with chronic neuromuscular diseases. According to the stage of functional abilities in the range from V to VII, out of that sample 35 chronic patients have been extracted. Maximum static forces of muscular segments or functions of the hand have been evaluated on the basis of ergometric measurements. Research methods have been presented, and the correlations of maximum static forces of muscular segments and motility of the correspondent segments of the hand in three groups of patients have been received. The content of clinical research has been discussed in the light of contemporary approaches to education, treatment and rehabilitation of patients with motor disorders and chronic diseases. Within clinical assessment methods, the dimension of will in coping mechanisms and elements of self-assessment in subjects has been observed, as well as the quality of life of patients with neuromuscular diseases. Special consideration has been shown with regard to possibilities of the application of rehabilitation / assistive technology, as well as regarding the need to educate expert rehabilitators in this specific field. With the results of clinical research, some aspects of personal experience of the patients with neuromuscular diseases have been presented. For that purpose, quotes from Branko Bizjak’s book “Oboreni pesimizam” (“Suppressed Pessimism”) have been added.

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