"Wilk opowiada o SMA" – terapia, informacja, komunikacja marketingowa i medyczna
"The Wolf Tells About SMA" – therapy, information, marketing and medical communication

Author(s): Diana Saniewska, Janusz Rutkowski
Subject(s): Media studies, Communication studies, Theory of Communication, ICT Information and Communications Technologies
Published by: Wydawnictwa Uniwersytetu Warszawskiego
Keywords: SMA; spinal muscular atrophy; The Wolf Tells About SMA; medical communication
Summary/Abstract: In this article, we present Jacopo Casiraghi’s "The Wolf Tells About SMA", which consists of 12 stories about the experience of a rare, chronic, leading to severe disability or premature death disease which is spinal muscular atrophy (SMA). From a clinical description of the disease we move to a metaphorical presentation in the book, which was given a clearly bibliotherapeutic character by the author-psychologist. We distinguish and discuss three functions of this publication: therapeutic, informative and marketing (in the context of the social campaign "The Wolf talks about SMA" – the well-known and well-liked read fairy tales for children”) and its potential in the field of medical communication. This book can become a tool for clinicians and educators in their daily hospital and academic work, as well as for patients and parents in their daily struggles with experiencing life with SMA.

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