Емоционални наративи и емоционални общности в контекста на родителската грижа за хора с увреждания в България
The paper primarily discusses how parents of children with disabilities remember and interpret their encounter and life with disability in narratives and communities with specific focus on expression evaluation and management of emotions. Based on 35 biographical interviews and 9 focus-groups (with informal and formal carers for people with disabilities) it reveals a specific emotion work, which detects and contributes to overcoming the barriers in the integration of existential and social experience, making possible both the inscribing in and distancing from particular social situations and narrative contexts. Following various intricate scenarios and plots of moments of sorrow and joy in the interviews, the present text also shows how emotions link individual life projects and goals to certain cultural traditions and legacies, to state and regional policies and social models of (care for) health and well-being. The links themselves lay in the basis of original types of social relationships, agencies and solidarities.
More...